Resources and Links
NATIONWIDE RESOURCES
The Leukemia and Lymphoma Society
The Leukemia and Lymphoma society can give lots of information for families, they also offer limited financial assistance. You will need to download the form frrom their website, take it to your social worker and there will be forms for you to fill out whenever you have expenses that can be covered. There is one form for travel expenses to/from treatments, tolls, parking. There is another form for expenses related to treatment, like prescription costs, labs, marrow transplant and stem cell transplant expenses.
National Children’s Leukemia Foundation
The National Children’s Cancer Society
The National Children’s Cancer Society has information and resources available for families dealing with pediatric cancers. The also offer financial assistance, you can download a form through their website, they get confirmation from your clinic and then will just send you assistance money for estimated expenses during treatments. They will call you and confirm that your child is still in treatment and that the expected expenses they have are still acurate.
Cure Search
This is the website for the Childrens Oncology Group that is running the clinical study that Peyton is a part of. Hopefully, the information that they will get from her and others like her will lead to a cure someday.
Pediatric Cancer Foundation
This group has a goal of a cure for pediatric cancers. They are located in Tampa, but are working to reach out nationwide to fund grants for research in pediatric cancers.
The Clayton Dabney Foundation
This is a foundation that helps with wishes and financial assistance for pediatric cancer families who are facing end-of-life struggles and needs. They reach out to families to help with quality of life and final “Everlasting Memory” moments.
The Silver Lining Foundation
The Silver Lining Foundation is out of Aspen, CO. They have a 6.5 acre ranch that hosts cancer kids and their families at no expense to the family. Some of the things they offer are family retreats, wish fulfillment, assistance with medical expenses not covered by insurance and a scholarship program.
Camp Sunshine
Nestled alongside the shores of beautiful Sebago Lake in Casco, Maine, Camp Sunshine provides respite, support, joy and hope to children with life-threatening illnesses and their immediate families through various stages of a child’s illness. The year-round program is free of charge to all families, and includes 24-hour onsite medical and psychosocial support. Bereavement groups are also offered for families who have lost a child to an illness.
Cancer Care
This is a resource for information for all sorts of cancers, they also provide some limited financial assistance for uncovered medical expenses.
Air Charity Network
All of the charity flight programs have come together under the one blanket name of the Air Charity Network. They provide free flights for families in medical need and compassion flights for military personnel and in case of disaster response.
Children’s Cancer Crusade
Jennifer Lehman runs this program of networking children with pediatric cancer. She also sends out a care package for each new child including some sweet little gifts and hats for those losing their hair.
Chemo Angels
The Chemo Angels program is a wonderful support program where the match up a cancer family with an Angel who volunteers to lift up the family with cards, encouragement and the Angels also send care packages for the children of the family. Most families will have two Angels that are dedicated to their family.
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FLORIDA RESOURCES
Children’s Cancer Center
The Children’s Cancer Center is an amazing support resource for families of pediatric cancer in the Tampa Bay/ St. Pete area. They have support groups, sponsor fun events for both patients, siblings and family as a whole. They offer some financial support and can also set up accounts for patients to receive tax-free donations for expenses. They are a wonderful group of staff and volunteers dedicated to making the lives of pediatric cancer families better.
Fore the Children
This is a foundation set up by Dana and Mark Clements in the Tampa Bay area. They hold annual golf tournaments to raise money that goes to benefit families in need due to pediatric cancers. They have provided smaller gifts such as a new pet and parties for cancer kids as larger assistance such as a car for a family without one and lawn equipment to replace that stolen from a family’s business.
Giving Hope Through Faith
This is a foundation set up by Sherry and Dirk Tucker in memory and honor of their son Zach who lost his fight against cancer. The GHTF foundation works to assists families of pediatric cancer in the Tampa Bay area by providing gift cards once a month for a year. These gift cards can include grocery stores, restaurant, entertainment and more.
Children’s Dream Fund
The Children’s Dream Fund is a wish-granting foundation that reaches out to critically ill children in Central Florida. Their wishes include cruises, trips to Disneyland and Give Kids the World, computers, shopping sprees and special themed parties.
B.A.S.E. Camp
B.A.S.E. Camp Children’s Cancer Foundation, established in Orlando Florida in 1982, focuses on providing a YEAR-ROUND series of programs to help children and families along the journey of cancer and other life-threatening hematological illnesses. B.A.S.E. Camp has a double meaning. First, it is an acronym for Believe, Achieve, Support, and Educate. Second, it is a term used in climbing for a place that is set to provide the starting point for a long assault on a mountain. We feel that cancer, sickle cell anemia, hemophilia, and other rare/orphan hematological diseases are just such mountains in children’s lives.
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PENNSYLVANIA RESOURCES
Frankie’s Fight is a 501c-3, non-profit organization. EIN, DLN, and additional informtion furnished upon request. Our mission is to emotionally and financially assist families devastated by pediatric cancer. We will also work to raise pediatric cancer awareness, as well as donate a portion of our proceeds to the latest pediatric cancer research. Our dedicated members will actively strive to reach these goals. We hope to have a tremendous impact on the families we help. We would like to raise pediatric cancer awareness in our community, and eventually other communities. We hope and pray that we may contribute, through our donations to research, to finding a cure for this horrible disease.
