First off, I wanted to say thanks to everyone who helped when the hat was passed. You’ve given us more of a fighting chance than we had the day we came home, and I can never repay everyone who donated. Please know that it was immensely appreciated in our time of need.
Well. We’re home.
It always amazes me how God puts what you need right in front of you at the right time, even though you don’t always realize it.
When we bought this house last year, we found a few small holes in one of our tubs. Anissa called around and found a guy who could come out and repair them. He was a nice, older guy. Fairly talkative and pleasant. This past week, 2 of our tubs developed holes. The one upstairs was leaking through the ceiling, so it was pretty important for us to get it fixed. I had a million things going on and didn’t really have the time to think about it other than to ask my mom to call someone and get it fixed, after learning that the warranty doesn’t cover tubs. She did a quick search and found a guy, coincidentally, the same guy, to come out. When he came to the house, he kept telling my mom, I swear I’ve been here before. He described Anissa, and after a little bit, he remembered back when we moved in. My mom explained her situation to him and that we would be coming home shortly, hence the need to get this fixed.
When I pulled up in the drive and saw a couple of repair trucks in the way, I was slightly upset because it blocked the easy path in to our house. Minor, but just another hurdle to deal with when my mind was already racing about everything the nurses and therapists had taught me. So, I drove over the lawn a little bit and pulled the car up to where we could get into the house easily. I got out, assembled her chair, and with the help of our dear sweet friend, Robin, we got her out of the car and into the house.
When we saw the repairman, he talked to us like he’d known us for 20 years.
It turns out that 20 years ago, this man’s wife was in a horrible car accident and spent 13 months in the hospital (4 in a coma), while he kept his 4 kids sane and together. When you’re struggling, there’s nothing quite like meeting someone who’s walked in your shoes at just the right time. We must’ve talked outside for an hour. We traded some war stories, and compared notes. When he described his wife’s willpower and inner strength, I thought he was talking about Anissa.
It was a very uplifting experience.
On the morning of the 19th, I did what I have been doing since this all began: I made a cup of coffee, went out on my back porch, stared off at the trees and asked the same question I’ve been asking daily, “What’s today going to bring Lord?”
Depending on what day it is, and what’s going on inside, I usually hear the wind blow, the dogs bark, occasional laughter, or maybe an argument at the breakfast table over who looked at who wrong. On Friday, after the BEST DAMN NIGHT OF SLEEP EVER, I heard laughter. To be more precise, it was howls and constant giggling. The strange thing is that it was coming from my left, out through the master bedroom window.
That was new.
The kids had snuck in to the bedroom and Anissa was tickling them, one-handed.
It was perfect.
Understand, I grew up in a broken home. My parents did their best, but, probably due to my upbringing, the one thing that I treasure above everything is my family. It was finally together again, and it was good.
Friday, Saturday and Sunday consisted of my own little personal version of “In A Fix” and problem solving. A few years back, our friend Robin was a certified massage therapist. I wanted her up here not only because she’s an awesome friend, but because I wanted her to work on Anissa. We’ve seen some positive gains from simple massages, as the neuro-pathways are waking up. So, while Robin was working on Anissa, I was running around to Home Depot, Target, Walmart, and Lowes, trying to find things to help me make the house more “Anissa friendly”. All in all, our house isn’t THAT bad for what we need. The archways and doorways are wide. It’s mostly one level, just a bedroom and the office upstairs. So, I focused on getting the bathroom modified. For less than $200, I got to go to one of my more favorite stores and problem solve, and came up with a pretty darn functional bathroom. It was the first time in forever that I’ve gotten to do something a little fun and with purpose. While I was out, Robin was working on Anissa with some pretty good response. She was able to feel certain areas of her body that she hadn’t before.
Every day is a constant series of ups and downs though. At one point over the weekend, she was looking in the mirror and asked me how I could love her when she looked so crooked and things didn’t work right. How can I be a parent when I can’t even walk. I responded with a how can you love me when I’ve gained so much weight. (Chocolate chip cookies have gotten me this far people. Go easy on the fat kid.) I also explained to her that she can be a parent in every way possible. Maybe not all of the physical stuff, but I can help with that. So throughout the weekend, we slowly learned how we’re going to make this work, and Anissa started taking steps to get things back to normal within her household.
She also got on twitter and chatted a bit with folks.
That’s a big step for her. She’s developed a slight fear of technology, because of all the things she was able to do before, she simply can’t do now. Things move too quickly for her. In an online world where a quick wit and fast typing were once her strong points, she’s having to process stuff slower, type one handed and struggles to keep up. But the key thing is that she’s trying, and loving it.
On Sunday, Robin had to leave and my Aunt Eileen flew back in from Houston. I asked Eileen to be here the first week to help me problem solve daily stuff and to be my eyes and ears at therapy. We found out that the therapy rooms at the new place aren’t big enough to accommodate family watching, but Eileen was able to have lunch with Anissa every day, and that was re-assuring to her. On Monday, we did get to accompany her throughout the day as it was orientation. Anissa had some trepidation about the new place. The week before she had to leave the people who she was comfortable with and go off into the great wide unknown. Think of it as going from junior high to high school. Terrifying for teenagers and neuro patients. Some of the patients would be familiar, but the therapists would all be new. They’d have to learn how to “get” her all over again.
On Monday, we got up at the crack of dawn, late, and headed up to Shepherd Pathways. The therapies consist largely of 50 minute sessions with many varieties of therapy. Every meeting we had, they asked Anissa what her goals were. Every therapists eyes got big when she very eloquently told them her goals. She talked slowly, and if you didn’t know she had the stroke, you’d have thought she was speaking slowly on purpose, to get her point across. Welcome to Team Anissa guys. She’s going to wow your socks off.
My birthday came and went, and we had a nice little party in the evening, together. It was simple, and perfect. When I blew out the candles (which my mom made sure there were 38 of), I made a simple little wish: Let’s see some movement on the right side, arm or leg, I don’t care, but by Friday, give me a nudge.
Every day, we got a little bit better as we worked out a routine. Every day she got a little more comfortable with the new setting.
On Thursday, she started acupuncture. Since this all began, it’s been in my mind to get that involved somehow, but I couldn’t figure out how to let a hospital allow someone else to come in and do that. So, I waited. As luck would have it, the doctor we’re seeing now, actually does acupuncture as part of treatment if the patients are willing to pay for it. It’s not covered by insurance, but I figured we’d give it a go anyway. So, Thursday, when I picked her up, I was half expecting a major leap forward. It didn’t come, but she did say that she could feel new areas of her face that she hadn’t before.
Then came Friday.
Friday was amazing.
It started out rough. She’d been having issues looking out at the road as we drove the hour to therapy. Things are moving way too fast for her, and she’s been trying to focus on things inside the vehicle. The ride home isn’t as rough because she’s either exhausted and naps, or she’s excited and talks about everything they did that day. On Friday, I thought I’d bring her itouch with us and give her something to focus on while driving. She watched a handful of the videos and pictures she’s made over the years. It made her a tad sad because she couldn’t remember how she made them. When I dropped her off, she said that she didn’t want to go and instead wanted to head on home. Eileen told her that today may be the day something monumental happens, and what would happen if she weren’t there to experience it. That got Anissa’s over the hump and she headed off to therapy, sullenly.
We had agreed to go shopping after therapy. There’s a Target real close, so we headed there as Anissa was describing the day. We trolled around Target for probably 45 minutes, grabbed a few minor things and headed out to the car. I think she liked just seeing something different. Everything was new to her. She saw the baby clothes and kept saying, “ooo…the babies”. She saw the towels and said, “Oooo…look at the bright colors.” It was as if everything was new to her. I guess sitting in a hospital room for 90 days doesn’t exactly open up the creative juices.
Afterward, we got to the car, and I helped get her in. As I was getting ready to close the car door, I did a quick visual check: legs in, seat belt on, right arm safe, right leg moved. Ok, close the door.
Waitaminit.
I opened the door back up and asked her to do that again.
She thought about it for a second, looked down at her right leg and concentrated. There it was, plain as day, her right leg moved out to the right, then it pulled back in.
Then she looked up at me and smiled.
I asked her to do that again so Eileen could see it.
Same thing.
I couldn’t stop shaking I was so psyched.
We’re doing this people.
Painstakingly slow, but we are doing this dammit.
On the ride home, Anissa slept like a rock and I let her sleep. She’d most definitely earned it.
Saturday morning, before she got out of bed, we worked on that leg a little more. She’s able to move it side to side pretty well. It’s weak, and only above the knee, but still, it’s there. When laying down, she can actually lift it up off the bed.
Over the weekend, I’d ask her to move it more here and there, in different settings. Every time, she was able to move it. It takes a lot of concentration, and more effort when there are a lot of things going on, but it’s definitely progress….and best of all I got my birthday wish.
on Mar 2nd, 2010 at 10:57 pm
There you guys go making me cry again! Happy tears though, very happy tears!
on Mar 2nd, 2010 at 11:17 pm
Baby steps. You’ll make it.
And happy birthday, Peter. Don’t let yourself get lost in shuffle.
K
on Mar 3rd, 2010 at 9:08 am
God is great. What wonderful news!
on Mar 3rd, 2010 at 12:31 pm
I’m a “lurker” – been reading for awhile but haven’t posted. I loved everything about this post, but the story about the plumber took my breath away. There are no coincidences. I truly believe God had a hand in that. Sound like that conversation was just what you needed, when you needed it. Wonderful.
on Mar 3rd, 2010 at 1:06 pm
I don’t even know how I got here. I’ve been clicking from one person’s blog roll to the next. I’m so glad I did get here. You’ve made all the difference in the world to me today. Thank you.
on Mar 3rd, 2010 at 3:52 pm
Wow! wonderful news all around! Baby steps!!!
on Mar 3rd, 2010 at 7:23 pm
Hi there,
I’ve been following your story for a while but am posting for the first time. I’m in awe of how you are handling things, having travelled somewhat of a similar road with my daughter (she has a heart condition). I know you probably get lots of ideas, but when I read about acupuncture it made me think about looking into an osteopath or cranio-sacral work. This work opens up movement and pathways through incredibly subtle adjustments to the body. I keep you all in my thoughts and prayers. I would like to contribute a little $$ but for the life of me couldn’t find a link to do so (which may be telling you a lot about how computer savvy I’m not.).
Best wishes to all of you.
on Mar 3rd, 2010 at 7:56 pm
As always, your post has moved me to tears. I am so happy for the progress Anissa is making, and so proud of you for your strength and love…you are an amazing man. Truly amazing…Anissa is a SuperWoman, and YOU, Peter…You are her SuperMan.
on Mar 4th, 2010 at 1:57 am
Wow…just wow! Anissa is amazing!
on Mar 4th, 2010 at 2:33 pm
This is so so fantastic !!!
Still and always praying . You all are such an inspiration
on Mar 5th, 2010 at 6:19 am
Wondeful news, well done team Anissa. Well done Anissa. And well done Peter.
Anissa asked how she could be a parent? The most important part of a parent’s job is love. She’s got that bit nailed. The rest will come slowly. And that’s why she’s got you, Peter. You’ve been managing the physical side amazingly. All she needs to do is love, because that’s what the kids need most. And get better of course – which it’s obvious she’s doing.
on Mar 5th, 2010 at 8:16 am
Quite simply, I’m thinking and praying for all of you! I’m so glad Anissa is home!
on Mar 5th, 2010 at 1:35 pm
You are inspiring the world! Go, Team Anissa!
on Mar 6th, 2010 at 5:36 am
I had a completely different thing wrong with me, but at one point could not walk and my left leg was “dead.” Months later, when my leg started coming around, I was better able to move it if there was a blanket over my leg. As in, when laying on my back, if told to pick my leg up I couldn’t, but if a blanket was thrown over my leg and I tried to push the blanket up, I could.
I discovered this at home, and don’t think my neurologists or physical therapists were ever told. I didn’t show the PT who was coming to the house 3x a week. It was just one of those little things that helped, but nobody suggested, so I wanted to suggest it to you, for your wife to try.
on Mar 6th, 2010 at 12:15 pm
Praise God, from whom all blessings flow!! I love reading how you’re improving day by day!! You’re never far from my thoughts and prayers, and now even people I know around here who have been praying for you ask for updates about ‘my friend who had the stroke’! People who don’t even KNOW you have fallen in love with your tenacity, girl! You’re one awesome woman, married to one awesome man! Very proud of you and praising God for what He is doing in your lives!!
on Mar 7th, 2010 at 9:51 pm
This is wonderful news!
Go Anissa! 🙂
on Mar 7th, 2010 at 11:21 pm
I’ve always found that the places I don’t want to go the most are the places where the most happens! What is it about moms and tickling?! I am so happy for you guys!
on Mar 8th, 2010 at 8:32 pm
Yes yes yes!!! I’m so excited for you guys!! Go Anissa!
on Mar 8th, 2010 at 11:38 pm
I literally have goosebumps! I’m in awe of both of you!
on Mar 9th, 2010 at 9:21 am
Just got home from spending a week with my mom who is still rocking the recovery from stroke a year and a half after the fact. She was completely paralyzed on the right side after her stroke and actually did 2 grocery stores with just a cane on this visit. I’m so glad you got the acupuncture treatments going. And massage too. Perfect. Anissa will be walking again before Independence Day. That is my prayer of intention. And Peter, God is watching and you make him smile.
on Mar 9th, 2010 at 8:24 pm
Dear Anissa,
I don’t know if you will remember me–and it’s certainly ok if you don’t! But I hadn’t been on your blog for about a year actually….(ashamed to say) and so I was wanting to get back in the swing of things after my own personal battle and check to see how Peyton and your family are doing.
I have to say I was absolutely blown away when I learned that you’d suffered a stroke BUT…in true Anissa fashion, you are gonna continue to KICK BUTT and BEAT this obstacle because that’s just what it is, Anissa. It’s an obstacle–a big one to be sure and yes, it’s perhaps left a few scars here and there but you are STRONG –even at the broken places. And you and your family are awesome testimonies of all that is good in this world!
Pete, thank you so much for continuing to share with us. I know you have a lot on your plate (what an understatement THAT is lol) but I have a lot of admiration for you also for stepping up and doing what needs to be done. But..from the way Anissa has spoken of you in her blog, I wouldn’t have expected any less! You guys are in my thoughts and prayers! Warmly, Lori (from Maine)
on Mar 9th, 2010 at 11:15 pm
This is fantastic news!!!!!!!! 🙂 I am SOOOOOO happy for ALL of you!!! Continuing to send many hugs and prayers your way!!
on Mar 10th, 2010 at 6:39 pm
Wonderful news! So glad to hear it. Thinking of you as you forge forward…
Love and prayers form Brazil
on Mar 10th, 2010 at 6:49 pm
Reading your posts always make me smile a big huge grin, amazing!!
on Mar 10th, 2010 at 8:00 pm
I know you all have a lot going on right now, but I also know how the cancer community pulls together to offer encouragement to others who are fighting cancer. When you are feeling up to hopping around and checking out blogs again, could you please stop by and offer some encouragement to a friend of mine who was just diagnosed with ovarian cancer? http://jnzean.blogspot.com/
Thanks,
on Mar 10th, 2010 at 8:55 pm
Oh man, this makes me just tear up. Memories of my mom in the same situation just keep flooding back.
Keep going strong!
on Mar 10th, 2010 at 9:17 pm
Amazing. Absolutely… amazing.
Thank you for keeping us updated!
on Mar 10th, 2010 at 9:31 pm
Happy Birthday, and Happy Awakening to Anissa!
on Mar 10th, 2010 at 10:55 pm
After the devastating situation with Layla Grace (@LaylaGrace on twitter), it is so wonderful to see something so positive and uplifting/
Thank you so much for sharing with us
on Mar 11th, 2010 at 10:20 am
I never get through a post without tears. Go Anissa! You are amazing!
on Mar 12th, 2010 at 7:41 am
I’m so excited to read this update! Go Team Anissa! I believe that plumber was sent to you for a reason. Amazing how that works.
p.s. Tell Anissa that being off Twitter and Facebook isn’t such a bad thing. Total time suck.
on Mar 12th, 2010 at 2:08 pm
You two are amazing! And an inspiration to all of us. Belated welcome home!! You guys ROCK!
on Mar 12th, 2010 at 2:10 pm
Wow! Awesome progress guys!
on Mar 13th, 2010 at 8:23 pm
I can’t believe I’m so behind that I’m just reading this now. I feel terrible.
But…
How wonderfully exciting!!!
Anissa is just sooooo amazing. You go girl!
on Mar 13th, 2010 at 9:55 pm
Brilliant news :D!!
on Mar 14th, 2010 at 4:02 pm
*keyboard mash*
SO glad you got your birthday wish!