Wow, you haven't been amazed until you've seen the amount of food that will actually fit inside a 2 year old. Due to the steroid they have her on, Peyton will consume a full meal every 2-3 hours of the waking day, AND wake up around 4 AM to let me know that if I'm interested, she could stand to eat. To which I tell her, if it ain't vital, lay down and go to sleep. She will be shoving food in her mouth as she complaining that her tummy hurts because she's full, because the medication makes her feel as if she's just constantly hungry. Poor thing, it's putting a lot of stress on her stomach. She's put on a whopping 5 lbs in a little over 2 weeks and considering she hardly ate the entire time she was in the hospital, that's pretty impressive. It's a good thing though because she'll be on the Decadron through the middle of August and then her appetite will be influenced more by the chemo. She'll start to lose weight then, so it's good that she has a little extra padding to lose.
Our good friend, neighbor, and Peyton's favorite babysitter is going to give her a haircut this week to help alleviate some of the trauma of her hair falling out. Our nurse said it was time as the third does of Vincristine usually starts to do the trick and we'd already started to see eyelashes and the random strand of hair coming out. Hopefully she'll be willing to wear some cute little hats or bandanas, but at least she's got a cute head. She's like her daddy that way.
We're so glad to see the friends and family who've made it this site already, we don't expect people to log in every day, but it's a way for us to express what's going on and keep you in touch and updated. We thank you all for your sweet words and prayers and please feel free to contact us if you'd like. We are ok to talk!
—Anissa
on Jul 29th, 2006 at 11:33 am
Thank you for this site and sharing your life with us.
Give Peyton a hug from me today.
on Jul 29th, 2006 at 7:13 pm
Hi Anissa,
I feel like I know you as Sandi has told me so much about you and your family. Sandi is a very special person and God has blessed you with her.
When I heard about Peyton, my heart just went out to ya'll. She is in my prayers each day and I'll keep praying that she beats this.
Now let me tell you about my friends that I have told about Peyton. I am in a "Red Hat" group Mostly "OLD" women with a lot of grandchildren. We want to make Peyton an honorary member. I have already bought her a Pink baseball cap that we'll decorate and sign and since she's young she has to wear lavender and pink not Purple and red. Anyway what I need to know is " what size is she so we can get her a lavender outfit. If this is not OK with you , Please let us know since we don't want to do anything that you don't approve of.
Maybe one day we'll get to meet when your family comes to visit MS again.
All my love and prayers,
Betty
on Aug 1st, 2006 at 8:31 pm
Pete & Anissa
If there is ANYTHING I can do to help , just say so.
My love to you all,
Ed Kogok